Patients and their care partners are usually the first to notice new or changing symptoms and are the connecting “thread” between different healthcare encounters. In this article Sigall Bell, Fabienne […]
Partnership in practice
DATA-CAN: a co-created cancer data knowledge network to deliver better outcomes and higher societal value
Mark Lawler, Chris Carrigan, and colleagues describe how DATA-CAN’s co-created partnership has brought together patient representatives, healthcare professionals, and academic and industry researchers to facilitate responsible collection and use of […]
Improving the quality of neonatal care by working collaboratively with families
A collaboration between the Point of Care Foundation in the UK and members of the international Vermont Oxford Network of specialist neonatal care centres have been using experience based co-design […]
Access to personal electronic health records during covid-19
Rapid roll out of e personal health records for patients accessing sexual health, contraception, and abortion care at University Hospitals Plymouth NHS Trust has benefited patients and health professionals alike […]
Humanising obstetric care in operating theatres
Around four out of ten pregnant women in the UK give birth in the operating theatre. Few are prepared for delivery in this forbidding, high tech environment and the experience […]
A co-led training programme to support patients to take on key roles in teaching and advancing active patient and public involvement
The progressive development of patient and public involvement (PPI) in healthcare and health research reflects a shift to working “with” patients rather than for them and its benefits are increasingly […]
The power and potential of using social media to connect patients and health professionals
Linda Tutty, a patient with inflammatory bowel disease, and Alaa El Hussana, a colorectal surgeon, discuss how social media can be used to empower patients, promote self management, and co-develop […]
The hidden army: how a GP-patient volunteer group responded to covid-19
When the UK government declared a national lockdown on 23 March 2020 in response to escalating rates of covid-19, Elliott Hall Medical Centre (EHMC) was overwhelmed with calls from concerned […]
How self recorded PROMs can improve the management of patients with mental health disorders
Aalborg University Hospital – Psychiatry in the North Denmark region has pioneered a new approach to managing patients with schizophrenia and depression based on asking patients to routinely monitor and […]
How nutritional volunteer workers have taken the lead in tackling high rates of childhood malnutrition in India
High rates of childhood malnutrition and premature death in poor regions in Karnataka state in South India have spurred an innovative project to involve local women to take the lead […]